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Promoting Patient-Centered Research in the Puget Sound Asthma Coalition

Patient Centered Outcomes Research Institute – $24,995
3/1/15 – 2/29/16

The purpose of this contract is to promote patient-centered research in the Puget Sound Asthma Coalition (PSAC). The PSAC is a multi-organizational effort to improve the quality of life for individuals, families, and communities affected by asthma.

Abstract

The purpose of this contract is to promote patient-centered research in the Puget Sound Asthma Coalition (PSAC). The PSAC is a multi-organizational effort to improve the quality of life for individuals, families, and communities affected by asthma. Our four aims include:

  1. Strengthening the governance infrastructure of the coalition to support patient-centered research,
  2. Strengthening the communication infrastructure of the coalition to engage parents of patients in research,
  3. Expanding and maturing research partnerships, and
  4. Developing comparative effectiveness research questions.

These aims will be accomplished by supporting a coalition chairperson to lead meetings and interim activities, administering a process evaluation survey to members to assess our sense of purpose, membership and representation, and adopting community-based participatory research principles to evaluate potential research opportunities. Communication infrastructure will be strengthened through development of a coalition orientation and a patient advisory group. External communication will be enhanced through changes to the coalition website and development of a social media site.

Research partnerships will be expanded and matured via creation of a research advisory network. Comparative effectiveness research questions will be developed based on the cross-cutting topics identified in Tier 1 through our community cafés with parents of children with asthma. Potential research topics will be refined by the parent advisory group and the research advisory network, using criteria developed by the coalition. Logic models

Primary Investigator

Julie Postma
Julie Postma, PhD